Parents, UK hospital clash over taking baby Charlie Gard home to die

Parents, UK hospital clash over taking baby Charlie Gard home to die

Parents, UK hospital clash over taking baby Charlie Gard home to die

Great Ormond Street Hospital insist Baby Gard - who has brain damage and can not move - should not be allowed home as his ventilator is too bulky to fit through his parents' front door.

They had devoted five months to fight to have Charlie, who suffers from the rare condition mitochondrial DNA depletion syndrome, travel to the U.S. for pioneering treatment.

Sadly, the proceedings dragged on for so long that the parents ultimately admitted on Monday that it was too late for even the experimental treatment to help their son.

However, the hospital underlines, "an important result" was reached: "Charlie's life support has not been removed, before responding to his parents' legitimate request and before properly and thoroughly verifying the child's clinical conditions and all the existing possibilities of care".

The case drew worldwide attention after Charlie's parents received support from Pope Francis, U.S. President Donald Trump and some members of the U.S. Congress.

"While Charlie will not continue to live, there will maybe be a different way of approaching these situations", Bertini said.

Tuesday's proceedings were the latest in an agonising series of court hearings for the Gard parents.

Mr Armstrong added that GOSH, where he has been in intensive care since October, "says it won't stand in the parents' way yet is putting up obstacles".

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So far as GOSH is aware, invasive ventilation is only provided in a hospital setting. He is now on life support.

Why did Charlie's parents end their campaign?

The judge said Great Ormond Street bosses had indicated that there were practical difficulties.

The efforts to keep Charlie's parents from seeking overseas treatment were based on deep ethical errors, a Catholic expert in medical ethics told CNA earlier this year. Charlie's parents fought back, arguing they should be allowed to pursue any and all options that might save their son.

On Monday, heartbroken Chris and Connie gave up their legal struggle to let little Charlie leave the United Kingdom for a trial treatment overseas because it was "too late" to help him.

The judge deciding the case, Mr Justice Francis, said that part of the disagreement appeared to be over GOSH's view that a ventilator will not fit through the front door of the property to which Charlie's parents want to take him. After exhausting treatment options in London, a judge ruled that taking Charlie to the USA for an untested experimental treatment would do more harm than good. It said the proposed treatment had never been tried on a human with Charlie's condition and no tests had ever been done on mice to see whether it would work on a patient like Charlie.

Judges do not usually venture into politics, he continued, but the cuts to legal aid made in 2013 removing public funding from most family cases had made an exception for parents who risked losing their children to the care system, he explained.

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